Get ready to fall madly
in love with two of the most remarkable women ever to be immortalized
on film.
Kathy Conour has cerebral palsy and her caregiver for the last
thirty-seven years has been and remains Diana Braun, who has
Down syndrome.
No, this is NOT a sad story. It is actually much more like
a female version of Neil Simon’s hilarious ODD COUPLE, with Kathy
as Felix and Diana’s wonderful sense of humor ruling the
day as Oscar. Not to be outdone, Kathy has a sign on her wheelchair
that says: “Pat me on the head and I’ll bite your hand!” The
one emotion you will not experience with these women is self-pity.
Neither Diana nor Kathy have any room for anything but optimism
in their busy and full lives as activists in the world of human
rights for the disabled.
Diana was sent to a state home when she was twelve years old
and then to a developmental center when she was nineteen. One
of the most poignant motifs throughout the film is Diana’s ongoing
attempts to reconnect with her mother who couldn’t cope with
the lifestyle of caring for a daughter with Down syndrome. Through
those experiences, Diana developed an intense distaste for the
idea of housing people with disabilities such as hers in state-run
institutions. When she and Kathy connected with each other, Diana
became Kathy’s caregiver and they became life-long friends
and unpaid lobbyists for their cause.
Traveling their own state of Illinois and even the halls of
Congress in Washington, D.C, they regularly lobby their own United
States senators and other representatives for more independence
for the disabled. Diana served on the Illinois Council on Developmental
Disabilities and works tirelessly to call attention to the fierce
independence that these two women depend on to keep their spirits
alive and teeming with hope.
With that as background, the emotion that I kept feeling throughout
the film was a deep and profound respect for and admiration for
the spirits of these two women.
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Just traveling is a major challenge for them, requiring a van that
has been adapted for Kathy’s wheelchair. Are they fazed by
it? Do they get discouraged when even Medicare challenges their
activities outside the home? Heck, no!!
Most particularly, they live in a no-whine zone that is inspiring
beyond words. NEVER do we hear anything from either Kathy or
Diana that bemoans their fate. They absolutely accept the hand
that nature has dealt to them and they live their lives in gratitude
for each other and for what they DO have, with no discussion
about what they DON’T have.
It is so striking to watch Diana go through the several hours
every day that she needs to spend caring for Kathy and do so
with such humor and grace. When she recognizes that she has trouble
balancing the household checkbook, she simply asks for help.
No self-pity. No “oh-poor-me”. She simply calls a friend, says she
needs help and offers a home-cooked meal in exchange for some checkbook
guidance.
Watching Kathy and Diana live their lives often seems like
an I-Ching guide to gratitude and appreciation for the gifts
most of us receive simply by being in good health. When film
can actually encourage and stimulate transformation, the art
form transcends itself. After having seen BODY AND SOUL, I personally
feel different. Even using the word “disabled” seems more than a little incongruous
when it apples to Diana and Kathy. They seem much more at peace
in their own hearts than many able-bodied people, including, I
am embarrassed to admit, myself. After watching this film, I resolved
to be much more conscious of how fortunate I am and much less conscious
of the things that I allow to bother me, most of which seem so
petty in comparison to the challenges that Kathy and Diana face
every day. I fell completely in love with these two women and I
believe that you will, too.
Body & Soul: Diana & Kathy is part of the Spiritual
Cinema Circle DVD collection in May, 2008. For more information
please click on the Spiritual Cinema Circle graphic at the top
of the right hand column.
Stephen
Simon co-founded
www. Spiritualcinemacircle.com and produced such films as SOMEWHERE
IN TIME and WHAT DREAMS MAY COME. He also directed and produced
both CONVERSATIONS WITH GOD and INDIGO and is the author of THE
FORCE IS WITH YOU: MYSTICAL MOVIES MESSAGES THAT INSPIRE OUR
LIVES.
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